Data has always been the bedrock of clinical research and Health Economics and Outcomes Research (HEOR). But not just any data will do. Researchers need research-ready data – data that’s been cleaned, de-identified, integrated and prepared for analysis. Too much time is spent sifting through fragmented, inconsistent datasets. This increases the risk of false conclusions, and the time spent wrestling with the data also delays life-changing insights for patients.
Integrating diverse datasets such as claims, mortality, and social determinants of health (SDOH), into a cohesive, usable format remains one of the biggest hurdles in life sciences research.
We’ve all heard it before: healthcare and clinical data are often trapped in silos. Claims data lives in one place, mortality data in another and SDOH might be sitting elsewhere entirely. These datasets are critical to understanding patient trajectories, health outcomes and intervention efficacy – but when they aren’t integrated, researchers miss important opportunities.
Critical links between socioeconomic factors and health outcomes can easily be overlooked, leading to gaps in insights. The time spent manually cleaning and integrating fragmented datasets slows research timelines and diverts valuable resources. Without precision in linking datasets, confounding variables and biases can compromise the reliability of results. Valuable time, resources and opportunities for breakthroughs are lost, delaying life-saving discoveries and insights.
How do life sciences and healthcare organizations overcome these challenges? The answer lies in tokenization. Data tokenization protects sensitive information by replacing it with a secure, non-sensitive equivalent known as a token. This token acts as a stand-in for the original data but has no exploitable value on its own. The key feature of tokenization is that the original data cannot be derived or reconstructed from the token without access to the corresponding tokenization system.
Tokenization de-identifies sensitive patient information while preserving its analytical utility, making it invaluable for research. It facilitates compliance with privacy regulations like the Health Insurance Portability and Accountability Act (HIPAA) and the General Data Protection Regulation (GDPR) by replacing Personally Identifiable Information (PII) with secure, non-reversible tokens. This also enables seamless integration of claims, SDOH and mortality datasets, improving cohort matching and eliminating inconsistencies. By delivering pre-blended, research-ready datasets, tokenization eliminates the need for months of manual data preparation, allowing researchers to focus on generating insights instead of wrestling with and cleaning raw data.
The difference between relevant and useful insights and missed opportunities often comes down to the quality of the data. With increasing demands for precision, speed, and compliance, researchers need more than raw datasets. They need research-ready data. At LexisNexis® Risk Solutions, we understand that by harmonizing, securing and integrating complex datasets into research-ready data, we can help remove the silos of fragmented systems and information and promote faster, more accurate and actionable results.
Inaccurate or incomplete data undermines scientific rigor. By harmonizing and validating datasets, research-ready data minimizes errors which can improve the accuracy of findings. This is foundational for high-stakes activities like drug development or health outcomes research.
Tokenization ensures datasets are linked with precision, so researchers get a full 360-degree view of patients. For example, precise data linking prevents confounding variables from derailing results when analyzing how socioeconomic factors influence treatment outcomes.
Manually wrangling data is resource-intensive and delays research timelines. Prepared, research-ready data enables teams to focus on insights instead of cleaning data.
Combining SDOH, claims and mortality data better enables researchers to see the full picture, from clinical outcomes to socioeconomic influences. This kind of real-world data is critical for understanding treatment efficacy across diverse populations and informing evidence-based decisions.
Transforming fragmented, siloed data into secure, research-ready assets requires a structured process that balances data quality, privacy and usability. Combining advanced technologies like tokenization and AI powered Expert Determination with rigorous preparation and integration ensures researchers get clean datasets that are ready to use. LexisNexis® Risk Solutions uses a structured, proven process that promotes data that is accurate, secure and ready for analysis.
STEP 1: Collection and Preparation: Data is gathered from multiple sources (claims, SDOH, mortality) and standardized to remove inconsistencies.
STEP 2: Tokenization: PII is replaced with secure tokens, safeguarding privacy while enabling seamless data integration.
STEP 3: Expert Determination: Using AI-powered techniques, datasets are de-identified to meet HIPAA compliance standards without losing analytical value.
STEP 4: Integration and Delivery: Researchers receive high-quality, secure datasets ready for immediate analysis.
STEP 5: Enabling Advanced Analysis: Once integrated, LexisNexis® Risk Solutions provides tools that can help researchers derive actionable insights, incorporating key data elements like mortality outcomes to drive informed, data-driven decisions.
STEP 6: Quality Assurance: LexisNexis Risk Solutions helps ensure long-term data quality, security and compliance through continuous monitoring, regular audits and adherence to evolving industry standards.
Speed, accuracy and privacy compliance are high priorities in clinical research. Research-ready data delivers a streamlined, cost-efficient approach that accelerates discovery and helps ensure insights are grounded in accurate, comprehensive and multi-dimensional datasets. For life sciences organizations, this means faster clinical trials, more precise health outcomes research and a clearer path to improving patient care.
If your team is still spending months wrangling fragmented data, it’s time to rethink your approach. Investing in research-ready data will streamline workflows, reduce errors and help you stay ahead in a data-driven industry.
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